His Quest to Cure ALS

I first met Augie Nieto almost 13 years ago. He had been recently diagnosed with ALS and the disease was clearly advancing quickly. A friend of mine told me about the incredible fitness pioneer who founded Life Fitness who was becoming a pioneer on another front—how to battle an incurable disease that to this day remains a mystery as to what causes it and who gets it, and with no cure.

Although the life span of those who suffer the cruelest of diseases is very short, Augie has defied the odds and not only that, he is giving others hope. He founded Augie’s Quest to help find a cure and to this day has raised more than 60 million dollars for innovative research, treatments and to help fast track drugs through the ALS Therapy Development Institute. In 2018, ALS TDI is expected to begin clinical trials of a new treatment drug AT-1501 that may slow the progression of ALS.

Augie and his beautiful wife Lynne, who is literally his right hand (and left), are one of the most inspiring couples I have met because they have chosen to see what most would view as a curse, as a blessing. While the disease has limited Augie’s body, it has opened his mind and heart to all the possibilities and to wanting to help others who may suffer the same misfortune.

I am not only a fan of Augie and his organization; I have become a celebrity ambassador and was honored in 2017 for my work in helping raise awareness.

I first met Augie Nieto almost 13 years ago. He had been recently diagnosed with ALS and the disease was clearly advancing quickly. A friend of mine told me about the incredible fitness pioneer who founded Life Fitness who was becoming a pioneer on another front—how to battle an incurable disease that to this day remains a mystery as to what causes it and who gets it, and with no cure.

Although the life span of those who suffer the cruelest of diseases is very short, Augie has defied the odds and not only that, he is giving others hope. He founded Augie’s Quest to help find a cure and to this day has raised more than 60 million dollars for innovative research, treatments and to help fast track drugs through the ALS Therapy Development Institute. In 2018, ALS TDI is expected to begin clinical trials of a new treatment drug AT-1501 that may slow the progression of ALS.

Augie in November 2017 (pictured with me, Lynne Nieto, Jann Carl and David Forster at the Augie’s Quest Bash)

Augie and his beautiful wife Lynne, who is literally his right hand (and left), are one of the most inspiring couples I have met because they have chosen to see what most would view as a curse, as a blessing. While the disease has limited Augie’s body, it has opened his mind and heart to all the possibilities and to wanting to help others who may suffer the same misfortune.

I am not only a fan of Augie and his organization; I have become a celebrity ambassador and was honored in 2017 for my work in helping raise awareness.

My original story on the Today Show when I first met Augie and Lynne.